Primary Care Research

National ART and IVF Consumer Survey

The Victorian Department of Health is leading a consultation to help shape reform to improve quality, safety, transparency, and care of Assisted Reproductive Technology and In Vitro Fertilisation Regulation and Accreditation in Australia.

The team are wanting to hear from people who have experience with Assisted Reproductive Technology (ART) in Australia. ART services include treatments and support such as In Vitro Fertilisation (IVF), using medicine to help release eggs, artificial insemination, freezing eggs, sperm or embryos for later use, using donated eggs, sperm or embryos, checking embryos for genetic conditions, and fertility preservation.  They are also wanting to engage with people from culturally and linguistically diverse communities, First Nations peoples, and people living in rural and regional areas. While we want to hear from anyone with lived experience of ART/IVF, we know that people from these communities use ART and IVF services, and we want to ensure their experiences are heard and help inform reforms planned for the sector.

The survey is voluntary and anonymous. There are a number of questions where you can write your answers. Please do not write identifiable information about yourself or any other person into these free text spaces, so your responses can remain anonymous. If you are including information about another person too, for example, about your partner’s experience, please make sure you get their consent first to share their information.

The survey is open to people who:

• have used ART/IVF services (including egg freezing) anywhere in Australia – you may live in a rural, regional or metropolitan area
• have donated genetic material such as sperm, eggs or embryos
• have supported someone who has used ART/IVF services
• are a donor-conceived person.

About the survey:

• Anonymous – responses will remain confidential
• Voluntary – participation is entirely the individual’s choice
• Approximately 30 minutes to complete
• Open to adults (18+) who have used ART/IVF services anywhere in Australia (including egg freezing), supported someone in the process, donors, and donor-conceived people.

The survey can be accessed via this link

Do you have a Bipolar Disorder?

Researchers at Swinburne University of Technology and the BEAT Lab are looking for participants to help explore how rest–activity patterns, measured through wearable technology, may help predict significant mood changes.

You may be eligible if you:
• Are aged 18–65
• Live in Australia or New Zealand
• Can understand written and spoken English
• Have a diagnosis of bipolar disorder
• Can provide details of your treating medical practitioner
• Are not currently experiencing a mood episode

The study is conducted entirely online, and participants will be reimbursed for their time.

Interested?
Email: tippingpoint@swin.edu.au
Or head to: https://www.beatlab-research.com/projects/tipping-point

Co-designing an equitable model of comprehensive cancer survivorship care for adolescents and young adults

Adolescent and young adult (AYA) cancer survivors face ongoing physical and psychosocial challenges after treatment, yet access to coordinated, age-appropriate follow-up care remains inconsistent. Building on the evidence-based “Engage” program, this UNSW-led initiative will partner with young survivors and clinicians to co-design an AYA-specific survivorship model that strengthens integrated care while supporting young people to manage their long-term health and wellbeing.

To learn more about the study and check your eligibility, please complete our short screening survey via the secure REDCap link or contact the research team at engage@unsw.edu.au if you have any questions. Participants will receive a $75 VISA gift card for their time.

The resource

The linkage dataset currently has 10 datasets and over 170 million records (20.7 million for CES) from 2006 onwards including: 45 and Up Study questionnaire data (including the SEEF – Social, Economic and Environmental Factors sub-study) linked to Medical Benefits Schedule (MBS) Pharmaceutical Benefits Scheme (PBS), Admitted Patient Data Collection (APDC), Emergency Department Data Collection (EDDC), Mental Health Ambulatory Data Collection (MHADC), Cancer Registry (CCR) and Deaths Data (RBDM and COD).

Partnership

CES-P&CH is built on strong and long-standing partnership between the Centre for Primary Health Care and Equity (CPHCE) at the University of New South Wales and the Sydney Local Health District (SLHD), the South Eastern Sydney Local Health District (SESLHD) and the Central and Eastern Sydney Primary Health Care Network (CESPHN).

Project website

The project has a webpage on the CPHCE website. This page includes information about CES-P&CH including a description of the project, research forum reports, lists of publications and conference presentations see https://cphce.unsw.edu.au/research/health-system-integration-and-primary-health-care-development/central-and-eastern-Sydney

Social Isolation Report

This study explored two measures of possible social disconnectedness (social isolation and living alone) and their impact on health, health care and mortality using the Central and Eastern Sydney Primary and Community Health Cohort/Linkage Resource.

Click here to read the Social Isolation Report.