Primary Care Research

Do you have a Bipolar Disorder?

Researchers at Swinburne University of Technology and the BEAT Lab are looking for participants to help explore how rest–activity patterns, measured through wearable technology, may help predict significant mood changes.

You may be eligible if you:
• Are aged 18–65
• Live in Australia or New Zealand
• Can understand written and spoken English
• Have a diagnosis of bipolar disorder
• Can provide details of your treating medical practitioner
• Are not currently experiencing a mood episode

The study is conducted entirely online, and participants will be reimbursed for their time.

Interested?
Email: tippingpoint@swin.edu.au
Or head to: https://www.beatlab-research.com/projects/tipping-point

Co-designing an equitable model of comprehensive cancer survivorship care for adolescents and young adults

Adolescent and young adult (AYA) cancer survivors face ongoing physical and psychosocial challenges after treatment, yet access to coordinated, age-appropriate follow-up care remains inconsistent. Building on the evidence-based “Engage” program, this UNSW-led initiative will partner with young survivors and clinicians to co-design an AYA-specific survivorship model that strengthens integrated care while supporting young people to manage their long-term health and wellbeing.

To learn more about the study and check your eligibility, please complete our short screening survey via the secure REDCap link or contact the research team at engage@unsw.edu.au if you have any questions. Participants will receive a $75 VISA gift card for their time.

EndoOptions

Are you wanting to make decisions about managing your endometriosis?

Researchers from Macquarie University are seeking participants for a study assessing a new decision support tool, EndoOptions, for people with endometriosis. EndoOptions is an online resource that aims to support individuals to make decisions about endometriosis symptom management.

You may be eligible if you are:

• 18 years or older
• Diagnosed with endometriosis or suspect you have it
• Considering symptom management options
• Living in Australia

What’s involved?

• Get access to an online decision support tool
• 4 online questionnaires over 6 months
• $50 gift card for anyone who completes the trial

Participation is voluntary and confidential.

Interested?

Email lynda.fallon@students.mq.edu.au or click here to participate.

CogCoach-Health

Recruitment is now open for CogCoach-Health, a 12-week digital trial for adults 65+ with mild cognitive changes. This study is led by Prof. Kaarin Anstey and team from the University of New South Wales and Neuroscience Research Australia.

Participants will receive online guidance and professional support on physical activity, nutrition, and cognitive and social engagement to support healthy brain ageing. While based in Sydney, the program is fully online and open to participants Australia-wide.

Interested or know someone who might be? Learn more or register interest:

• Website: https://www.unsw.edu.au/research/cogcoach-health
• Submit an EOI: https://forms.unsw.edu.au/form/eoi-cogcoach-health
• Or email with any questions: cogcoach.health@unsw.edu.au

The resource

The linkage dataset currently has 10 datasets and over 170 million records (20.7 million for CES) from 2006 onwards including: 45 and Up Study questionnaire data (including the SEEF – Social, Economic and Environmental Factors sub-study) linked to Medical Benefits Schedule (MBS) Pharmaceutical Benefits Scheme (PBS), Admitted Patient Data Collection (APDC), Emergency Department Data Collection (EDDC), Mental Health Ambulatory Data Collection (MHADC), Cancer Registry (CCR) and Deaths Data (RBDM and COD).

Partnership

CES-P&CH is built on strong and long-standing partnership between the Centre for Primary Health Care and Equity (CPHCE) at the University of New South Wales and the Sydney Local Health District (SLHD), the South Eastern Sydney Local Health District (SESLHD) and the Central and Eastern Sydney Primary Health Care Network (CESPHN).

Project website

The project has a webpage on the CPHCE website. This page includes information about CES-P&CH including a description of the project, research forum reports, lists of publications and conference presentations see https://cphce.unsw.edu.au/research/health-system-integration-and-primary-health-care-development/central-and-eastern-Sydney

Social Isolation Report

This study explored two measures of possible social disconnectedness (social isolation and living alone) and their impact on health, health care and mortality using the Central and Eastern Sydney Primary and Community Health Cohort/Linkage Resource.

Click here to read the Social Isolation Report.